As some of you may know, at the age of 12, I was diagnosed with Crohn's Disease, an incurable, inflammatory disease of the digestive tract. After having several devastating flare-ups, I went on a quest to do anything I could to treat my disease by experimenting with numerous alternative and experimental therapies and diets (including intentionally infecting myself with parasitic worms).
When I realized that the information I had built up from this quest could heal other patients, I went on another quest: to meet as many patients as I possibly could and share the information I had learned with them. But I knew there were tons of other patients around the world who had gone through their own journeys and had extremely valuable information to share themselves. And by sharing it, they could heal more patients. And so I went on a new quest: to make it possible for Crohn's & Colitis patients around the world to share and learn from one another.
Crohnology is that quest. Crohnology is a place for people with Crohn's & Colitis to share the extremely valuable information each has accumulated on their journey to better health. And in turn, heal others by informing them of treatments that work.
And today I'm proud to announce that the organizers of the Medicine 2.0 Conference at Stanford are going to have me on stage to demo Crohnology!
This is going to be a really awesome day--this Friday Sept 16. It will be the first real public debut of Crohnology, which has so far been in private alpha.
I'm excited to show you what we've been building, and how our awesome community of e-patients with Crohn's & Colitis are engaging in a powerful, new way: a way that enables them to meet patients near them, share their most successful treatments, and keep people informed about their health. It's fun, it's engaging. And most of all, it's extremely empowering.
If you're a patient and want to join, email me at alpha@crohnology.com, or request an invite at Crohnology.
You should follow Crohnology on Twitter and Facebook.
A big thank you to everyone who has gotten me this far including the entire C3NProject Team, Michael Seid, Peter Margolis, RockHealth, Halle Tecco, Leslie Zeigler, Bassam Kadry M.D., Larry Chu M.D., Ian Eslick, Marcio von Muhlen, Rick Morrison, Nikolai Kirienko, Ryan Weald, and many more--most of all, the engaged and giving e-patients on Crohnology.
Last week I did a 30-something-minute podcast interview with Steve Wright, the co-founder of SCDLifestyle. Steve asked me questions about why and how I started Crohnology, what my experience wa...
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